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Personal Health Care Advocates -
Protecting your rights and welfare within a hostile health care system |
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What
services will PHCAs provide?
The primary mission of
the PHCA is to supplement (or even replace if need be) the Thus, PHCA services are likely to be provided, whenever possible, on a subscription basis. Subscription services will generally fall into two categories – intake services and ongoing services. In addition, special ad hoc services will be available. In all instances, the emphasis of the PHCA should be to educate, to advise, and to advocate for their client. |
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Subscription services Intake services Intake services might include: - introduction to and interview with the PHCA (for local clients, in-person interviews are preferable; on-line or telephone interviews can be used for long-distance clients) - complete medical history by the PHCA - critique of client’s health insurance plan - develop a list of the client’s overt and potential health problems, and a set of overall health care goals - PHCA begins coaching client on how to become a more effective patient - with specific health care goals in mind, PHCA develops specific recommendations on how the client can optimize the care he/she is receiving - initiate formal discussions on living wills and organ donor options - instructions on accessing ongoing services - assistance in obtaining client’s medical records, to build an ongoing centralized medical record that can be controlled and accessed (i.e., owned) by the client Ongoing services Ongoing services might include: - develop ongoing relationship between client and PHCA - “coaching” service before key doctor’s appointments (strategy session prior to doctors visit: decide what medical issues need to be resolved, what information will be needed in order to make decisions, what questions to ask the doctor to gain that information) - “debriefing” service after key doctor’s appointments (critique of what transpired during visit to doctor, assessment of adequacy of the plan developed by the doctor and client, assessment of whether there is a need for follow-up contact with doctor prior to next scheduled visit) - timely revision of client’s medical problem list and goals - continual updating of client’s computerized medical records - secure access to computerized medical records by client 24 hours/day - with client’s permission, providing doctors with data from client’s computerized medical records - replying by phone or e-mail to any non-emergency health care questions within 24 hours Ad hoc services Ad hoc services will be more active and more direct than intake or ongoing services. Whereas intake and ongoing services take place outside of the traditional health care setting (i.e., in an office or on-line), and at a time other than when the client is actively undergoing a health care episode, ad hoc generally will take place during the health care episode itself, and may occur on-site if necessary (and if possible). - assessment during health care episode (such as hospitalization) of client’s health care status, needs and appropriateness of care - ongoing monitoring of client’s condition/status during health care episode - directly communicating or negotiating on client’s behalf with physicians, hospitals or insurers, to clarify issues of care (such as definition of the medical problem(s), defining the diagnostic and therapeutic options, defining the risks and benefits of various options, clarifying the physicians recommendations, assessment as to the adequacy of care). |
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